Nothing About Us, With Us
So. A week on from the news breaking that NHS England have given the WV gig to Sir Stephen Bubb, where are we?
Probably two steps further back than we were a week ago. In the past week most of the members of the Bubb & Squeak breakfast club have issued statements that they will be putting the views, needs etc etc of learning disabled people and their families at the heart of the planning. This is an immediate red flag for me – people who put disabled people & their carers at the heart of things don’t announce it. They just do it. They do ridiculously old fashioned things like ask questions, listen, understand. (I bet the “modern way” crowd are pissing themselves laughing over that idea). As time passes, it feels like everything about the WV review is shamefully empty and self serving.
On Monday the Bubb group are meeting up again. No details on what is happening. Another brekkie? Paint balling? Who knows. For me, this group is now so tainted, it can only do more harm than good. To be so out of sync with the people you’ve been appointed to serve goes beyond offensive.
In the meantime, NHS England issued another statement today, with a promise of a new announcement next month about a new action plan for dealing with the ATU issue. This is probably Bubb’s The Plan. The words carry an air that things are whizzing along. The reality has a more snail like quality to it.
The #justiceforlb group campaign was about all the things the Bubbfest is not. Profound engagement. Blistering creativity. Passion. A heart. Ears. Drive. Brains. Stoicism. Incredible humour. All the attributes needed for fantastic change.
I get livid when I see something posted about Bubb, the charities, NHS England and all those vacuous words. But it doesn’t last long because I know that the #justiceforlb energy is too strong to allow the Bubbs to steer the ship.
No more statements please like “we need to work out how best to engage with people and their families”. Stop it. Its bollocks. There is no intent behind that statement.
You might start though with the thought that perhaps it would work better with a power shift – we know what we want – if we think you’ve got anything to offer, we’ll engage with you.