Beta Blockers & Well Being
It’s a respite day. And I havent felt as low as this for a long time. Low for myself and low for the world (not that the world is any of my responsibility).
I’ve been trying to process the events of the weekend, in particular being blocked on Twitter by Jan Tregelles, the £130k+ per year CEO of Mencap. I’m in good company because she blocked Sara Ryan, George Julian, Neil Crowther & Justice For LB as well. Yesterday, a well meaning chap from the Wales branch of Mencap suggested that all the people who’ve been blocked should reflect on the part they played in Jan’s actions. I’ve tried. I’ve really tried to have an objective reflection but I’m still left with the thought, “what a total shit”. Laying in bed last night, I dreamed up a new sit-com, black comedy called ” Cut From The Same Cloth”. I had been rewatching Victoria Wood’s brilliant play, Pat and Margaret, about the two sisters, separated when they were 10. “Cut From The Same Cloth” starts with the same premise, only in this story, the two sisters go on to have identical careers as award winning CEOs. They, Jan and Katrina, will do anything to protect themselves and their empires by most notably, crapping all over the poor sods who enable their empires to exist. Sorry nice man from Wales – that’s about as objective my reflections can get at the moment.
I contrived to start my respite early today as I had to phone HMRC for their help with the support workers’ tax returns. HMRC have sent me new tax codes for two of the support workers and I haven’t a clue what they mean. So I got away from Steven’s at 10, instead of 2. I was on the phone 85 minutes. I spoke to three different people in three different teams, in between several choruses of Vivaldi. The last person said, “Oh. What you need is our dedicated carers support helpline. I’ll put you through”. 17 minutes later the same woman was back on very apologetic that nobody in the dedicated carers support team was available but as stated in the dedicated carers support service level agreement, a dedicated carers support advisor would get back to me by 1pm on Wednesday. I tried explaining that I only have respite today and for the rest of the week, I’ll be up to my wrists in, er…. dedicated caring. It made no difference. The realities of being a carer clearly not fully grasped by the dedicated carers support help desk.
This is what respite is like. Huge chunks of it disappear in dealing with the bureaucratic bullshittery of Personalisation.
Whilst on my 7th track of Vivaldi, my mind drifted to the carers assessment the other week. All those questions about what you’d like to do with some time away from caring if Panel agree to allow you to have some. Courses. Coffee mornings. Zumba classes. Pampering afternoons. One thing that you’re not asked about is whether you’d like to do sod all. I’ve scoured the Care Act and all its references to Carers’ well being and nowhere can I find any mention that a carers well being might be improved by doing sod all. That’s all I want to do for the rest of the day. Sod all. Laying on the sofa in my flat, perhaps watching The Lady In The Van, but ostensibly doing sod all. It would improve my well being no end.
There is a link to this seemingly random rant. I think I can join the dots. There is a direct hierarchal line that goes from me on the phone to HMRC and Jan & Katrina. Their empire is built from it. For them to exist, a huge Maelstrom of pointless activity has to be taking place beneath them. They inflate in direct correlation to the amount of nonsense those beneficiaries beneath them get caught up in.
Because here’s a thought. If my well being outcomes were measured by my capacity to do sod all, and just live, just be, then their entire empires would come crashing to the ground. There would be no need for Jans and Katrinas.
Cue end credits with final score by The Brighouse Brass Band.
From → Social Care