Skip to content

A Painful Pathway

February 11, 2017

Steven had a bit of a shock last night at the Mencap Pool. There was a first timer there; a guy probably a few years younger than him with a carer.

Steven can be thoroughly ruthless with other learning disabled people – they almost become invisible to him. But he is very interested in the carers.

So he swam over to the new chap’s carer and did his usual; “Hello man. What’s your name man?”

The carer replied: “Oh come on Steven. You know my name. You know who I am”.

Steven got right up close to the chap’s face before delightedly exclaiming: “It’s John from M”.

It was one of the guys who used to work at the respite place Steven went to for about a year. The place that Steven has been too scared to go back to since he was released from his detention. It’s the place where he went for one night in 2009 before Whistler’s Mother dragged him off to the Positive Behaviour Unit.

When Steven was telling me about the encounter he became concerned for the young lad who was there with John. Let’s call him Alfie.

“Alfie will be going to M House for a long time. Alfie can’t go to his Mum and Dad’s house for a massive long time. Alfie will be sad”.

Steven has obviously got it into his head that anyone who goes to the respite place are automatically on a conveyor belt to the positive behaviour unit.

Who knows? He may be right. Since 2010, I’ve met several people locally for whom the care pathways in Hillingdon are absolutely terrifying.


From → Social Care

  1. That’s why ‘pathways’ have been created, to standardise care/treatment to make it easy and therefore more efficient and profitable.

    It is a frightening word, with coercion, no choice and no individuality, it is a process .

    And one place it does not lead back to is your loved ones and your real home.

  2. Shirley Buckley permalink

    Once again Finola you are right. We both know Martin will never be free again. Since 2002 he has been a prisoner of the system. And there is nothing that can change it

  3. weary mother permalink

    As usual, so many points made here, and as always all are spot on.

    The first:

    We families of sons and daughters with learning disabilities live all the time with some degree of fear.

    Shockingly – we mainly fear the people and the services paid to support us and to offer care to our vulnerable sons and daughters. Plus, we have little or no redress for nil, poor, or even abusive care, that will not cost us even more energy and life – with little if any outcome far less any justice..

    Paradoxically – I have seen our sons and daughters; the most powerless of people – the people who live on the pointy receiving end of all this -,consistently behaving in a respectful, and welcoming way to the people who hold their dignity, their lives and their happiness in their hands.

    Yet when asked the question – our sons and daughters will ever bravely, openly and trustingly name people who are kind to them and those who are not. But only if the ‘less kind’ are not present.

    Our sons and daughters live with suppressed fear ? How shaming – of the people they fear – and are paid only to ‘ enable’ them.

    It is an enforced myth that our sons and daughters choose to spend their days isolated with other learning or otherwise disabled others.

    It is plain wrong – for any group of people to be herded together on criteria chosen by others. Including on the basis, in this instance, that they have all passed an intellectual inability assessment. And then be expected that they will all like the same things – and or each other.

    My son was continuously bullied for trying to speak up for himself in this regard – and was forced to sit in misery in activities not of his choice, with people he shared very little in common, by staff of a day unit. The best staff there spent time chatting with him – shared their interests and his – and they found him activities where he could be himself.

    These excellent staff were also bullied – by the manager – and the other kind of staff.

    They too lived in fear.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s

%d bloggers like this: