So that was Christmas 2017. We had a lovely time & the George Cole & Dennis Waterman record certainly added to Steven’s cheer.
But before we’ve taken down the decorations, up popped the council twice to remind us that it’s silly to wish it could be Christmas everyday.
Yesterday I got an email from the social worker about the Community DoLS. She’s got to start all over again and redo the mental capacity assessment! She wants to bring a male colleague in the hope that he’ll engage Steven better. This is to assess whether Steven has the capacity to consent to his 2:1 support arrangements which in their eyes amount to a deprivation of Steven’s liberty.
It is such total nonsense, I can’t put any energy into it at all. Does anyone in their right mind consider having support to go to the sweet shop, a deprivation of liberty? When we go to see the Wham! Tribute band next month, are we seriously depriving Steven of his liberty? The acid test has become totally corrosive of how a normal life functions.
Then, next Wednesday we have the start of all the repair work to Steven’s house that have needed doing since he moved in. We’ve got two days next week of a bath being fitted and then two days the following week of Steven’s bedroom being replastered to repair the damage caused by the damp problem. Then the following week we’ll have to redecorate the bedroom again because the council don’t consider that their responsibility.
I haven’t told Steven yet. He’s coped with Christmas pretty well but there’s still the “am I going to be taken away in January” anxiety to contend with. I’ve had endless discussions with the support workers about how to manage those few days because Steven won’t be able to use his room for at least three days. We toyed with the idea of booking into a hotel but scrubbed that as it may play into the fear of being taken away. The best solution is that Steven stays in his adored Cowley house and sleeps in my room and I sleep at my flat for the duration.
I guess the good news is by this time next month the house will look like it should have done when Steven moved in back in October 2016.
I suspect the Community DoLS business will rumble on much longer.